Nearly five years ago, on Jan. 5, 2017, Myra and Nathan Edwards’ lives changed forever.
Their son, Bentley, came into the world, a bouncing baby boy. At least that is what they thought.
Two days later, as the young couple was preparing to leave the hospital and take their son home, an alert nurse noticed not all was well, though she couldn’t quite put a finger on it.
“Something just looks off to me,” Myra recalls the nurse saying before taking Bentley to the newborn intensive care unit for tests. While there, little Bentley experienced seizures, and the hospital staff discovered he had suffered a pediatric stroke during birth.
He was transferred to Brenner Children’s Hospital, where doctors confirmed he had experienced significant brain damage.
“On the (MRI) images, the doctor showed us the parts of Bentley’s brain which had died off,” Myra Edwards said.
Doctors then prepared the couple for what they said lay ahead of them — a lifetime of caring for Bentley, whose brain damage was so extensive he would never be able to care for himself.
“Based on the parts that were damaged, Bentley would have a movement issue like cerebral palsy on his left side, his left side would be weaker, he could have developmental delays, as well as some vision impairment,” she said.
Funny thing was, no one explained that to Bentley. Over the coming days he acted largely as a child who had suffered no stroke — eating well, acting alert, moving and developing as a baby is expected to in his first...
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